Baltimore, MD (USA) where families from around the world met to discuss BTHS. As a result, Barth Syndrome Foundation made a unanimous decision to work together to find a cure for this multi-system disorder. Barth Syndrome Foundation strives to accelerate progress through collaboration between families and scientists.
Barth Syndrome Foundation
Barth Syndrome Foundation is the only world-wide volunteer organization dedicated to saving lives through education, advances in treatment and pursuit of a cure for Barth syndrome (BTHS). They started in 2000, after the first international conference held in