Joshua Frase Foundation

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The Joshua Frase Foundation supports medical research for myotubular myopathy (MTM) and other related congenital myopathies.

The foundation offers support to families who have been affected by the disease. MTM leaves children unable to perform essential activities such as swallowing and breathing. MTM results from a blockage of muscle cells that inhibits transmission of vital genetic information needed for proper growth. The improper muscular development of the babies ultimately translates into a quality of life that is greatly impaired. The Joshua Frase Foundation has provided researchers with finances that have furthered advancements for an MTM cure.



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